CHD isn’t just a childhood condition—it’s a lifelong journey. In this blog, an adult with CHD shares his perspective, from navigating open-heart surgery to choosing daily to live fully despite limitations. For parents and caregivers, his story offers insight into the inner thoughts of a child growing up with CHD, and the resilience and strength that can emerge along the way.

As a heart mom, the most common statement that I hear from other people who don’t have medically complex children is “I don’t know how...

We’ve all heard and probably said something similar in the past. It can be easy to think you can do it all and never ask for help from...

A year ago, we rushed this sweet girl to the doctor and then we were immediately sent to the ER. The triage nurse rushed us back, and 10...